Dialysis patients share personal experiences in new video

A unique, new video produced by The Scarborough Hospital is not only an outstanding educational tool for dialysis patients and those living with Chronic Kidney Disease (CKD), but also proved to be an excellent lesson in providing patient-focused care for health care providers.

“The team in the Nephrology and Diabetes program had originally planned to create this video with basic information about CKD and how to best prepare for dialysis,” says Ethel Doyle, Patient Care Director of Nephrology and Diabetes at The Scarborough Hospital. “However, when we vetted the idea through a group of patients, the journey took an abrupt turn. The patients told us that a video which provided information and experiences directly from those patients living with CKD would be much more valuable, and we changed the focus to what we have today.”

“This experience truly reminded all of us as healthcare professionals that asking and listening to patients is the most valuable means for learning how to improve the patient experience and serve our diverse community,” Doyle adds.

“I am hoping that the passion and honesty that the patients in this video had drives the message home for everyone who uses it,” says Terri Bradshaw, one of the eight patients interviewed for the video. “I also hope it will guide patients and healthcare providers alike in seeing dialysis in any form as the common thread that helps us enjoy a longer and healthier life.”
The video is also available for patients and families through the Kidney Foundation.

“The Scarborough Hospital’s dialysis video is a great addition to the roster of patient information materials available through our website,” says Wendy Kudeba, Director of Marketing and Communications for The Kidney Foundation of Canada, Ontario Branch. “When facing something as important as choosing a treatment option, it is exceptionally valuable for those newly-diagnosed with kidney disease to learn more from someone who has already gone through the experience.”

Paulette Lewis, a Nurse Practitioner in The Scarborough Hospital’s kidney clinic for the past eleven years, points out that “many patients who come to us are reluctant to start dialysis. After all, it’s not like something you do for a few weeks and be done with it; dialysis is for the rest of your life. This video will help new patients understand that, once they start on dialysis, it can make a positive difference in their lives.”

The full video is available on The Scarborough Hospital’s YouTube Channel.